The Speed of Dark

“That doesn’t matter. There’s always something. Lou, no matter if a computer or another machine or another person can do any particular task you do… do it faster or more accurately or whatever… one thing nobody can do better than you is be you.”

“But what good is that if I do not have a job?” I asked. “If I cannot get a job…”

“Lou, you’re a person — an individual like no one else. That’s what’s good, whether you have a job or not.”

“I’m an autistic person,” I said. “That is what I am. I have to have some way… If they fire me, what else can I do?”

“Lots of people lose their jobs and then get other jobs. You can do that, if you have to. If you want to. You can choose to make the change; you don’t have to let it hit you over the head. It’s like fencing — you can be the one who sets the pattern or the one who follows it.”

I play this tape several times, trying to match tones to words to expressions as I remember them. They told me several times to get a lawyer, but I am not ready to talk to anyone I do not know. It is hard to explain what I am thinking and what has happened. I want to think it out for myself.

If I had not been what I am, what would I have been? I have thought about that at times. If I had found it easy to understand what people were saying, would I have wanted to listen more? Would I have learned to talk more easily? And from that, would I have had more friends, even been popular? I try to imagine myself as a child, a normal child, chattering away with family and teachers and classmates. If I had been that child, instead of myself, would I have learned math so easily? Would the great complicated constructions of classical music have been so obvious to me at first hearing? I remember the first time I heard Bach’s Toccata and Fugue in D Minor … the intensity of joy I felt. Would I have been able to do the work I do? And what other work might I have been able to do?

It is harder to imagine a different self now that I am an adult. As a child, I did imagine myself into other roles. I thought I would become normal, that someday I would be able to do what everyone else did so easily. In time, that fantasy faded. My limitations were real, immutable, thick black lines around the outline of my life. The only role I play is normal.

The one thing all the books agreed on was the permanence of the deficit, as they called it. Early intervention could ameliorate the symptoms, but the central problem remained. I felt that central problem daily, as if I had a big round stone in the middle of myself, a heavy, awkward presence that affected everything I did or tried to do.

What if it weren’t there?

I had given up reading about my own disability when I finished school. I had no training as a chemist or biochemist or geneticist… Though I work for a pharmaceutical company, I know little of drugs. I know only the patterns that flow through my computer, the ones I find and analyze, and the ones they want me to create.

I do not know how other people learn new things, but the way I learn them works for me. My parents bought me a bicycle when I was seven and tried to tell me how to start riding. They wanted me to sit and pedal first, while they steadied the bike, and then begin to steer on my own. I ignored them. It was clear that steering was the important thing and the hardest thing, so I would learn that first.

I walked the bicycle around the yard, feeling how the handlebars jiggled and twitched and jerked as the front wheel went over the grass and rocks. Then I straddled it and walked it around that way, steering it, making it fall, bringing it back up again. Finally I coasted down the slope of our driveway, steering from side to side, my feet off the ground but ready to stop. And then I pedaled and never fell again.

It is all knowing what to start with. If you start in the right place and follow all the steps, you will get to the right end.

If I want to understand what this treatment can do that will make Mr. Crenshaw rich, then I need to know how the brain works. Not the vague terms people use, but how it really works as a machine. It is like the handlebars on the bicycle — it is the way of steering the whole person. And I need to know what drugs really are and how they work.

All I remember about the brain from school is that it is gray and uses a lot of glucose and oxygen. I did not like the word glucose when I was in school. It made me think of glue, and I did not like to think of my brain using glue. I wanted my brain to be like a computer, something that worked well by itself and did not make mistakes.

The books said that the problem with autism was in the brain, and that made me feel like a faulty computer, something that should be sent back or scrapped. All the interventions, all the training, were like software designed to make a bad computer work right. It never does, and neither did I.

CHAPTER ELEVEN